Riley’s whānau joins national fight for care
Wairarapa Times - Age Midweek: Eighteen-month-old Riley Peterson loved bunnies, walks in the push-chair, the swings at Queen Elizabeth Park, and most of all, her mum and dad. She was her parents’ “whole world”.
The desperate need for a child palliative care service
RNZ: Kathryn Ryan talks to doctor Amanda Evans and mum Rachel Hill about her son Otis.
The urgent need for a care service for dying children
The Post: Halfway into its three-year pilot, Wellington’s philanthropy-funded child palliative care service has three times as many patients as expected, showing how many families have been missing out. The chief children’s commissioner supports a call for urgent funding of a new national service for dying children, calling the current situation “untenable, inequitable and inadequate”.
'You simply don't get the support' - Calls for nationwide children's strategy
1News: Talking to families who recieved paediatric palliative care, and those who didn’t
New Zealand falling behind in care of terminally ill children - expert
Herald article: A specialist paediatric palliative care doctor says New Zealand is falling behind other nations in its care of terminally ill children and the Government must step up to help.
Webinar: Tamariki and rangatahi’s grief is everyone’s business
Webinar hosted by Dr Amanda Evans on grief.
Helping parents navigate the unthinkable ‒ why are dying kids reliant on charity?
The Post article: A secret donor’s gift will help more families of dying children get specialist support to navigate the unthinkable. But why is an essential health service having to rely on charity?
How to talk to people who are dying
Spinoff article: Some tips on being good company to someone who is facing their mortality.
The ongoing cost of our failure to support childhood grief
Stuff article: Childhood grief is a hidden public health issue that needs more focused attention and immediate action.
'It's just so not right': The postcode lottery for the care of dying children
Stuff article: If 5-year-old James Swan had died in Hamilton, his family would have had amazing end-of-life support. Instead, in Wellington, they floundered. Specialists have a plan to ensure no-one else misses out because of where they live. Now they just need funding.
PediPal podcast
Podcast: A monthly podcast about pediatric palliative care, hosted by two pediatric palliative care docs, Sarah Dabagh, MD, and Daniel Eison. Dan and Sarah interview Amanda Evans, who teaches them a bit of New Zealand history, some Maori concepts of health and illness, and a lesson on just how cool Jacinda Ardern really is.